I have taken license with Rudyard Kipling’s poem “If” to help me make sense of my disease. Hope there is something useful in it for you as well:

“When”

When you can make some sense of your disease
As you try to see the forest among the trees,
Find the hidden sunshine – feel the breeze
And keep on moving lest you quickly freeze;
When you can walk and make the most of walking,
Improve your balance to prevent a fall,
Train your […]